Rebuilding strength lost to cancer
By Catherine E. Toth
Advertiser Staff Writer
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A year ago, Roz Makaula led a completely different life.
Always active, Makaula hit the gym five times a week, hiked on the weekends and danced hula. She even had plans to pick up surfing at the end of the year.
At 31, she was living on her own in Nu'uanu, starting a career in television and keeping herself as busy as humanly possible.
Life wasn't just good, it was getting better every day.
Then, in December, she felt it. A lump the size of a half-dollar, firm and obvious, in her right breast.
The doctor quickly diagnosed her with breast cancer and scheduled a lumpectomy the next month.
Makaula couldn't believe it.
"Who thinks about that now, right? We're supposed to be invincible," she said.
Suddenly, Makaula couldn't run or lift weights or dance hula anymore. She had back-to-back surgeries, then immediately started chemotherapy. Then radiation. Then chemo again.
Her bones ached. She felt nauseated all the time. Her silky blond hair fell out.
After moving back in with her parents in Kailua, she had to take a leave from her job. And she had to accept the new reality that she couldn't do everything herself anymore.
"I was so used to being very, very active, having all this energy, and now I was tired all the time," Makaula said. "I was really upset about it. It was frustrating and humiliating at the same time.
"But those feelings have been replaced with realizing how fortunate I am."
Makaula was among the nearly 5,000 people diagnosed with cancer — 680 with breast cancer — in Hawai'i last year, according to the American Cancer Society. That number reflects only new cases of cancer.
Makaula's diagnosis was life-changing but not defeating.
Though she could barely walk around her neighborhood, Makaula knew she needed to stay in shape, to keep her body healthy. And it didn't help that she was putting on extra pounds.
"I was fine with going bald," she said, laughing, "but not with gaining weight."
She searched the Internet for exercise programs in Hawai'i tailored for cancer patients.
Nothing.
Then a news release came across her desk at KHNL, where she works as a producer. It was about the new Ho'ola Cancer Exercise Wellness Program at the Honolulu Club, which started last month.
The program is designed specifically for cancer patients who are deconditioned or chronically fatigued from their treatment or disease. Its goal is to help patients build muscle mass and strength, increase flexibility and endurance, improve functional agility and improve their energy levels and self-esteem.
And it's free.
"It was a godsend," she said.
Until a few years ago, exercise was not an integral part of cancer patients' treatment. There were not enough certified instructors to work with cancer patients, and the research about benefits was insufficient.
But that's changing, said Karen Merrill, the cancer-exercise specialist who designed the new program.
"Cancer is out of your control, so this program gives patients the opportunity to take charge of something," Merrill said. "They feel so drained and tired and sick and nauseous ... But they can maintain some level of cardiovascular fitness and strength that can help in every aspect of daily living, to just get through the day."
Makaula, who is still undergoing chemotherapy, sees Merrill twice a week. In a class with other cancer patients, Makaula learns strength-training and cardio exercises tailored to her needs and abilities.
After two weeks in the program, she is up to nearly 20 minutes of cardio while gaining strength in her upper body.
"Roz is an amazing individual," Merrill raved. "She works hard, she's smart and she processes everything you tell her. You know she's putting it in long-term memory. She's very upbeat."
She may be tired, her bones may hurt and her once-straight blond hair is now curly and brown.
But Makaula knows she has a lot to be thankful for: family, friends and new perspective on life.
"I feel like I've been given a new set of eyes," Makaula said. "Everything looks so different, so clear ... I feel so blessed."
ROZ MAKAULA'S FITNESS PROGRAM
Workout habits: Makaula participates in the Ho'ola Cancer Exercise Wellness Program at the Honolulu Club, doing cardio and/or strength training for about an hour twice a week. Though she still undergoes chemotherapy, she also hits the gym twice a week, getting in at least 15 minutes of cardio either on the elliptical or treadmill.
When and why I started working out: Fitness runs in the Makaula family. She started playing softball at age 5, and enjoyed a short collegiate stint at Chaminade University.
My good foods/bad foods: Makaula loves salads, particularly Waldorf salads. And she's partial to vegetables. "I eat anything green," she said, laughing. Her vice? Dove dark chocolate. "I gotta have that on the side somewhere," she said.
My biggest motivator: "The faster I can get healthy, the faster I can help other people in my situation get healthy, too," Makaula said. She wants to spread the word about the importance of exercise wellness programs for cancer patients and survivors, while raising awareness that breast cancer can happen to anyone.
What saves my sanity: Makaula writes in a journal just about every day. "I can just write without thinking," she said. "It helps me, not so much the day I'm writing, but when I go back and read what I wrote months ago. It's enlightening." Exercise and lots of laughter also help.
My next challenge: Her short-term goal is to get her strength back, to lose the 20 pounds she put on since undergoing treatment and lower her body fat. In the future, though, she's thinking about conquering a triathlon.
Advice for those in the same boat: "Talk about it," Makaula said. "Find someone you can confide in and lean on. And when people say they want to help you, let them."
Reach Catherine E. Toth at ctoth@honoluluadvertiser.com.